2023年4月30日

詹妮弗·斯科特早上/泰勒电报珍妮弗·斯科特/早上泰勒电报珍妮弗·斯科特早上泰勒电报的风信子金刚鹦鹉在远处喊道星期六早上在泰勒考德威尔动物园,数以百计的社区成员参加了一年一度的一大步走到战斗囊性纤维化。“伟大的步伐走路是一个年度完成全国各地走,“冬青伯克说,北德克萨斯高级开发主任囊性纤维化基金会”的章。组织最大的资金筹集活动,与北德克萨斯章进入24年,有近250人参加了周六的事件在考德威尔动物园。“这是每年增长,我很兴奋我们成长,”伯克说。囊性纤维化是一种进步,遗传疾病,影响肺、胰腺和其他器官。“因为囊性纤维化主要是肺部疾病,我们不做(慈善)运行……它只是一个悠闲的走,”伯克说。“我们的进步,因为我们正在努力治愈这种疾病。“通常Bergfeld公园举行,组织者说在考德威尔动物园举办会议不仅使它更有趣和悠闲的,但给与会者,尤其是儿童,事情看一边。“这很好。 I’m very happy how it worked because this is such a great draw because we have a lot of young families, so it’s fun for everyone,” Burke said. The Cystic Fibrosis Foundation was started in 1955 by a group of parents who were told their children would never make it to elementary school and refused to accept those conditions. “So, they got together and started fundraising and pooled that money together to start researching the disease,” Burke said. “It’s not a cure yet, but we have been working toward that direction.". Today, because of improved medical treatments and care, more than half of people with CF are 18 or older. Many people with CF can expect to live healthy, fulfilling lives into their 30s, 40s, and beyond, according to the foundation. “The greatest thing that we can know as patients is that we aren’t alone,” said Farrel DeBaltzo, who attended Saturday's walk. “Events like this are famous for bringing families and friends together to work toward one common goal.” Farrel and her husband, Zack, have been married since 2016 and were this year’s Great Strides ambassadors as they both have had cystic fibrosis since birth. “My parents were told by my doctors that I wouldn’t live past 8 years old, and Zach wasn’t expected to live past 18 years old,” Farrel said. Through treatments and medical advancements, the couple defied the odds, as Ferrel is now 40 and Zack is 37. When you look over at somebody that you know has CF, you know their life. You don’t necessarily know their circumstances or a lot of what they go through every day outside of CF, but you know those struggles. You know how to be compassionate for them,” Farrel said. “It creates a drive and passion and a perseverance in you to just appreciate every moment,” Zack said. Compared with many other diseases and illnesses, the cystic fibrosis community is a small one, as about 40,000 people have it. “We have a great group of people out there promoting it,” Burke said. “It’s a small, orphaned disease … but the local support has been amazing. Tyler is such a philanthropic town and has been very giving and supportive.”